Jim Beaver just made the Ice Bucket Challenge haters sit down and shutup
Disclaimer: You will probably cry when you watch the video
my dad died from ALS when i was 3 years old. he was 36. my mom was 33. that was 30 years ago. now i’m the same age my mom was when my dad died. and there is still no cure for ALS.
this is what happens when you have ALS: your muscles slowly stop working, one part at a time. for my dad, first he couldn’t use one of his hands. then his arm. then the other arm. then he couldn’t walk. then he couldn’t stand up. then he couldn’t talk. then he couldn’t swallow. then he couldn’t breathe. then he was dead.
this all took about two years. he was diagnosed when i was about one year old. the only memories i have about my dad are of an inert body in a wheelchair or lying in a bed with a bunch of tubes stuck into it. as i was learning to talk, he was losing the ability to speak. as i was learning to walk, he stopped being able to move. my mom often had to choose between who she was going to help go to the bathroom at any given moment: her husband or her toddler.
after my dad died, my mom took over the philadelphia chapter of the ALS association. it consisted of a shoebox full of notecards with names on it. now it is a multi-million dollar organization with a large staff. she is still in charge. my mom is one of the most amazing people on the planet, basically.
these past couple weeks have been mind-boggling. i have openly wept watching so many of these videos. i still don’t completely get how all of this has happened, but now we live in a world in which lil wayne and taylor swift and oprah and justin timberlake and weird al and bill gates talk about ALS. my mom just emailed me this sentence: “lebron james ice bucket challenge.” i mean, IS THIS REAL LIFE?! i just keep saying over and over: holy shit. holy shit. holy shit.
so far, it has raised over 10 million dollars… and counting. my mom has spent every single day of her life for the past three decades trying to get this kind of attention and funds for this disease.
i don’t care if it’s a stupid gimmick. i don’t care if people are just doing this because it’s trendy or because they want pats on the back. i don’t care if it’s the new harlem shake. i don’t care if for the rest of my life, when i talk about ALS, i have to say “you know, the ice bucket disease.”
please, everybody, please keep pouring buckets of ice over your heads. please keep donating money. please keep talking about this.
my mom’s chapter:
Yes, tumblr and I are still on a break. But I couldn’t not post this. Because it says it all.
what a beautiful person
And to the introverted theatre kids, public speakers with social anxiety, and florists with allergies.
Somewhere in the distance, Beethoven’s ghost is applauding.
My favorite post.
Ah ha! He said dyslexic writer :) that’s me
I’m heeeeeeeeeeeeeeeeeeeere. Sort of. Feeling vaguely ill and very very tired. I’ve worked 8 12 hour shifts over the past 10 days.
Do the maths. OWIE. I’m working tomorrow night, then I’m off for four nights in a row. BLISS. So tired. But, I am leaving this job on the 14th of Sept. Circumstances being what they are (ie, I’m sick of doing nights, my dad’s going to be working longer hours so won’t be able to take to me and from work) I’m busy applying for other jobs, well I will be, I haven’t had the energy to do anything lately. All I’ve been doing is working, going home, having breakfast, going to bed, getting up having a shower, dinner and going to work again.
One of the more positive things to come from the death of Robin Williams is that depression is being talked about again. I could stand and scream it from the rooftops if I thought it would be effective. WE NEED TO TALK ABOUT DEPRESSION. Not just person to person but on a GLOBAL scale. Depression kills. Period. Not talking about it isn’t helping anyone. Is it uncomfortable? Absolutely. Will it help? Undoubtedly.
I’ve suffered from depression on and off for about sixteen years, the last eight years severely. Depression is horrible. Its ……… really unless you’ve been there its indescribable. The lack of hope. The belief that it is never, ever going to be okay again. That you’re going to feel the way you are feeling right now forever. And for some people that idea is so bad, that they see no possible way out, around or over that fact. So they take the next, final step.
But not all lows will be forever, not all feelings will last forever, and eventually, if you really want it, and work at it, things WILL be better again. Please believe me, I’m the living proof.
To anyone depressed out there……… I can’t will you to live, I can’t force you to go on, but I just want you to remember one thing……… depression is temporary, death is a permanent solution to a temporary problem.
Talk to someone in your life, a friend, sibling, parent, a family member or teacher you trust. Scream, cry. Do what you need to do, but talk to someone……… please.
To everyone else, tell the people you love, that you love them. Hold them close. Cherish the time you have together, because life is short.
We have a mice problem in our house and uh, i’m voting for a - moving or b - burning down the house or possibly a THEN b. ICK. EW.
These. Are just perfect places to just relax and read a good book! Everyone should have a reading nook😃
A Message to the Depressed
I’m still in disbelief…
witches and wizards of colour